Monday, January 28, 2013

Things that go bump in the night

This weekend I had the pleasure of experiencing a sleep study to determine whether or not I have sleep apnea.  It seems that I stop breathing in the middle of the night in between my obnoxiously loud snoring. This cheery bit of news came from my husband who has the unfortunate job of sleeping next to me every night.  According to Jonathan, this job should require gun range quality ear muffs, and a hard hat.  The ear muffs need no explanation, but there is apparently a small risk that my snoring may one day bring down the ceiling fan... thus the hard hat.  I hate him. So, I signed up for the aforementioned sleep study.

It is widely known that I am a danger to myself and others, whether on foot or in a car, on a train or in a plane... You get the picture.  So, Saturday evening rolled around and Jonathan and the kids went to my nephews 3rd Birthday party (Happy Birthday Landon Man!!!) I stayed home to shower and show up for my sleep study at 8:30 P.M.  I was running a little behind, no time to dry my hair or put on tennis shoes.  The old faithful flip flops were calling my name.  As I ran towards the stairs at my usual break neck pace while carrying a overnight bag, blanket and King sized pillow, the flip flop decision came back to bite me.  I remember making it half way down the 21 steps before my feet went out from underneath me.  Then I woke up surrounded by my things with a literal pain in the @** and the nagging suspicion that I was supposed to be somewhere.  I broke 3 fingernails, scraped up my toe, scratched my hand, bruised my tail bone and my pride.  I think I only lost consciousness about 5-10 minutes, who can be sure?  The only thing that is certain is that I need constant adult supervision.

I gathered myself together and made my way to the car (second smartest idea of the night...coming in right behind the flip flops).  Then I called my brother and sister to confirm that as long as the bump on my head was going out I should be okay.  Clearly they are both medical professionals...not.  But, on to the sleep study with a possible concussion I went! When I arrived to the sleep study center the parking lot was empty and dark.  I rang the bell and was greeted several anxious seconds later by a man I had never seen before.  Stranger danger, anyone?  I proceeded to make nervous chit chat with him to get around to the lingering question,Who else is here with us in this creepy dark building? Yup, you guessed it. Just me and Lurch!  After my stranger friend got me tied up to every electrode,  EKG, cannula and probe he could find he told me to get some sleep!  Muahahahahahaha!  Or, at least that is the crazy laughter I heard in my head.  At one point he asked me to blink 3 times to get a baseline, so I did it and said "OK". Then he replied that there was no need to answer him because "He could see ALL.". Well, color me creeped out.  After saying my prayers for several hours followed by calling on the intercession of the virgin Mary and saying a Buddhist chant (p.s, I am Southern Baptist), I finally fell asleep for maybe 3 hours.  I was rudely awakened at 5 AM and escorted back to the scary still dark parking lot. I drove bleary eyed back home from one house of horrors to my own...The kids were up at 6:30.  But, in the words of Uncle Si, Hey! I still made it to church and that's a fact Jack!

Thursday, January 24, 2013

Double the love, Double the Fun!

   I have the great honor and privilege of being Mommy to three beautiful children.  They are each unique and beautiful little people who add something different to our crazy family dynamic.
My precious twin boys are almost 4 years old and they learn new ways to enjoy life each day (most  of which involve torturing their Mother & Sister.)  We have always known our boys had a little trouble hearing.  However, in March of this year we received a diagnosis that shocked our family and turned us down a new path of life.  
   We were told that both of our boys have bilateral Aural Atresia.  This is a congenital birth defect, it means that the boys have no opening to the inner ear.  They each have about a 35-40 decibel hearing loss.  We new they were having a slight problem, but attributed it to their "Narrow" ear canals.  We had been told that as they grew the canal would open up to allow more visibility to their ear drums.  Since Andrew & Chase displayed no other signs of microtia (deformed outer ear) or symptoms of the syndromes commonly associated with Aural Atresia their pediatrician did not suspect this was an issue.  The diagnosis was very hard for Jonathan and I to accept.  We felt so guilty as parents that we did not suspect the extent of their problem.  We were scared for what the future held for them as far as their education was concerned, etc.  We are so blessed that they do not have any speech delays, but sadly we realized after the diagnosis how many times they were guessing at what we were saying to them or focusing on our lips to concentrate on what we were communicating to them.  
   Talk about a wake up call.  Reality came knocking and we were hiding under the bed.  It was very sad and overwhelming.  There are not enough options for repair, there are no easy fixes.   As a parent you want to be able to fix everything.  For the first time in our parenting lives, we were lost.  In these past months we have gone for second opinions,  earned our Doctorate in "Googling" and found peace and calm in the midst of this storm.  God has really given us a peace and shown us how strong we are, but more importantly how strong and powerful he is. 

"Be still, and know that I am God; I will be exalted among the nations, I will be exalted in the earth."  Psalm 46:10
"And we know that in all things God works for the good of those who love him, who have been called according to his purpose." Romans 8:28

We are researching our best options now for surgery and/or Baha devices/Symphono devices.  My sweet husband has really been glued to the computer every minute of his free time looking for other families to speak with,  trying to find out about their success rates and trying to get a better feeling for the direction we should be taking.   He came across 2 families in Australia who are coming to the States this week to the California Institute, so we are praying for their families when we pray for our own!

2013- The year of at least 6 blog posts

It is 2013.  I vow to be a better blogger.  I vow to blog more frequently.  Okay, Okay... I vow to blog at least 6 times.   That is one more than last year.  So much has happened since my last blog post, that I will not bombard you with the details.  The Holidays came and went in an uneventful fashion, my kids continued to grow at an alarming rate of speed and I managed to keep the marriage going without my husband running out the back door screaming!   So, overall the end of 2012 spelled success at the Goodman household.   I can only wait with nervous anticipation at what 2013 has in store.
1) The twin sis and I will be turning 30- Oh My Lord, How did this happen?
2) My twin boys will be getting their corrective ear surgery this year
3) My sweet girl will be turning 6 & graduating Kindergarten in the Spring
4) Fingers Crossed we sell our condo and move...anywhere with a yard
5) My Twin sister,Sister-in-Love, & BFF Kim will be expanding the family with         new BABIES!!!
6) Did I mention the BABIES??????????????????
7) Adendum to the Baby Count- LK from my office- also having one!!! My heart       can't take it!

So, All in all.. I think 2013 is looking pretty promising for this girl...(Or Old Lady) which is what everyone in my office keeps calling me due to the impending celebration of 30 years of greatness.
I am hoping and praying that all of my family and friends will be as blessed this year as I feel this very moment!

Psalm 20:4 
May he give you the desire of your heart and make all your plans succeed.
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